Do I commit more time and money to resistance stretching? On one hand I am afraid it is too much money to spend. On the other hand, if it works then it is totally worth it. But then again - it’s a lot of money to spend and I am trying to work less, not more. The fear of spending money during uncertain times arises and weighs on me a lot but I don’t think it is a completely “valid” fear. I am still bringing in a little money and I do have savings so I think I am safer than I feel. I can feel a difference after every session but at the same time it doesn’t feel like it has an epic overall effect. I have spent a little...
Strengthen & Stretch: A Very Gentle Workout
Aug 03, 2020
I have to be honest, being chronically ill is like living on a roller coaster. My body is continually challenging me and it's difficult to keep the mind balanced when the body is pulling you up and down. Between the body and the mind, it is difficult to be as focused, productive, and consistent as I am used to. These last six weeks have been a really difficult phase but I am finding my way back and feeling a little better these last couple of days.
I tell you this because I have been struggling to find my way to be consistent with The Flexibility Guru. I started a YouTube channel but I have been at a loss on what I can share that would be most helpful. Today I feel like I have discovered at least one focal point for the channel! I am going to be sharing more workouts for people struggling with chronic illness. Now you don't have to be ill to do these workouts - they would be great for seniors, beginners, and self care days too!
Over the last couple of months I have really...
I've been working hard for 1,460 days for this...
Jul 20, 2020
Today is an important day to me. It is the day I am supposed to be fully healed from this medical nightmare. Four years ago today I went into the hospital as I was becoming paralyzed with Guillain Barre Syndrome. During this hospital stay I was told it would only happen once and it could take anywhere from 6 weeks to 4 years to recover. Six months later when it happened again, my neurologist explained that it would definitely be about four years before my nervous system would be fully healed. The myelin coating on your nerves can only heal 1 mm per day max, that's about an inch a month.
At that point I mentally prepared for a four year struggle. The saving grace was that I knew each year I would be healing more and more, so I was hoping the process would be less painful over time. If you have ever had nerve pain before, you may be able to imagine what every nerve in your body healing could feel like. It was slow though - I would feel the nerves regenerating in just my upper arm for...
Extreme Dieting In Hopes of Healing
Jun 22, 2020
I am entering a new phase of this healing journey. I feel like I have tried it all!
Prescriptions, Chinese herbs, acupuncture, Bach flower remedies, aromatherapy, supplements, detoxes and more. I also feel like I have failed a million times. In March my doctor reached his breaking point after I had a massive reaction to a prescription he had me on. He told me he felt there was something going on in my body that no medical test could diagnose. I have adverse reactions to every prescription he has given me, the detox supplements, and the vitamin IV's. There is something strange going on in my body that nobody can quite figure out.
He recommended that I see an intuitive healer he knows who specializes in muscle testing, nutrition and kinesiology. To be honest, I had an aversion to this. I understand the power of intuition but it is hard for me to trust a complete strangers intuition about my body - it's just a little outside my comfort zone. I felt like we had tried everything though...
Inner Ramblings of a Chronic Illness Warrior
Feb 24, 2020
I have been feeling so lost this week. I have been really sick again which always throws my psyche off but I am completely second guessing myself on just about everything. Today I am going to be vulnerable and share the inner workings of my mind in hopes it helps you understand a different aspect of living with illness...
Helpful Supplements While Using Disulfiram
Jan 20, 2020
This is a compilation of different supplements that can be helpful while using Disulfiram. I will try to keep it separated into different categories based on what issues you may be having but I have also included my top six supplements at the bottom.
I created an Amazon Shop that has all the supplements and the brands I recommend listed to create a quicker way to shop. I only used the brands that my doctor carries because I know they are superior and since this is an unregulated market, we need to be careful. I gave you options with the supplements offered in their pure version as listed on this page and some are combined. I combine where I can to keep the costs down.
You may see some supplements listed in multiple categories, this can also be a more economical way to choose your supplements. My acupuncturist has mentioned that taking so many supplements is stressful on our digestive system, so I try to cut down and only use what I specifically feel is helping. This...
Disulfiram: Bath & Beauty
Jan 13, 2020
The largest organ in the body is the skin. I don't think very many people give this a lot of thought but it is a way we both absorb and release toxins so what we put on our body is just as important as what we put in our body. I have been using all natural bath and beauty products for about eight years and finally switched my medicine cabinet out about three years ago. Even though I have been using all-natural, organic products there are still several changes I have had to make since starting Disulfiram. I tend to err on the side of caution because my body is very sensitive and has adverse reactions to many different things but I'm also a rebel that likes to test my limits and experiment with just how strict I have to be!
When using Disulfiram you will need to start reading the labels on all of your bath and beauty products. You will want to read the labels on shampoo and conditioner, soap, shower gel, shaving products, moisturizers, facial skin care, bath products,...
2019 in a Nutshell
Jan 06, 2020
At this moment, reflecting on 2019 does not bring a lot of joy. But it is important to remember those words "at this moment". I was able to see a client this morning but spent the rest of the day in bed too weak to function in any capacity. A year ago I felt healthier than I do today and I was still recovering from my hospitalization. At this point last year, my goal was to be as healthy as possible by summer 2019. My doctor told me to expect it to be at least a year before I would be back on my feet and he was very clear that he did not mean back to 100%.
I don't put a lot of faith or trust in doctors so I was determined to be back to work and living a full life by summer, and I was willing to try anything to get me there. I had already been suffering through Guillain Barre Syndrome for two years and the thought of another debilitating year was disappointing. I have spent the past year on a variety of supplements, three different IV therapies, herbal tinctures, Chinese...
Life on Disulfiram: Food & Products to Avoid
Dec 23, 2019
This is a list of all the foods you should not eat while using Disulfiram and for two weeks following. I am going to break them down into separate categories with foods that cause Disulfiram interactions, foods that are high in copper, the high polyphenol foods and supplements that people have experienced issues with, and finish with the ingredients in cleaning and beauty products that you need to avoid.
I think it is important to mention that some people don't change their diet aside from alcohol and they seem to do okay. Every body is different and we all have a unique journey we are on so if you want to continue your normal routine and just eliminate foods as they bother you, that is one approach to take. I already felt like poo when I started this medication and just didn't want to risk anything making me feel even worse so I decided to make the whole lifestyle change.
When I first encountered all these food restrictions I was feeling pretty nervous. I was under the impression...
Disulfiram for Lyme
Dec 01, 2019
When my doctor came back from the Lyme Conference and told me this medication was helping Lyme but most importantly Babesiosis, I felt like I had hope for the first time since I was diagnosed a year ago!
Most of the babesia research I have done shows that it is an incurable and deadly disease so there are moments where the struggle seems futile. Then chronic Lyme can also become extremely damaging and debilitating over time. I have read quite a few studies that have determined Alzheimer's is actually late stage Lyme. My future has been a bit scary to think about in regards to my health and aging.
He told me like most things in the Lyme world that the medication would make me feel worse before I feel better, but for a potential cure I was willing to sacrifice! Although I felt like I was finally managing the illness better, this definitely isn't the life I want to live. I felt fully confident I should take the risk and try it out.
Disulfiram, also known...
In Sickness & In Health
Nov 25, 2019
When I was first hospitalized for Guillain Barre Syndrome I received immunoglobulin treatment for five days. At this point in time the paralyzation was mostly from the waist down and although I couldn't feel my arms, I could still move them. On the third treatment the entire right side of my body lost all feeling and movement from my head to my toes.
I had been in the hospital alone for six days and it was the first tear I shed. It was such a massively uncomfortable feeling that it really scared me and I was worried I was having a stroke. They rushed my doctor down and he felt it was unrelated but I asked him to stop the treatment. The doctor honored my request to pause the treatment and within the next hour I could move the right side of my face again and the intense loss of feeling had dissipated.
They started the treatment at a much slower rate and it didn't happen again. This was my first official hemiplegic migraine and I have had them ever...
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